Approximately 30,000 people in the U.S. are living with ALS. It claims some 5,600 lives each year. Our family has been affected twice - once in 1988, again in 2007. DefeatingALS.com is dedicated to raising awareness of ALS in memory of our loved ones.
In just a few minutes, you can help. Learn how you can raise awareness of ALS & make a difference.
ASK CONGRESS TO SUPPORT THE ALS REGISTRY
The establishment of a national ALS registry will help identify the incidence and prevalence of ALS in the U.S. and collect data which is urgently needed for ALS research, disease management and the development of standards of care. A national ALS registry also will promote a better understanding of the disease, help to determine causes of ALS and significantly enhance the nation’s efforts to find a treatment and cure for ALS.
Please take a moment, visit the ALSA Advocacy Center here,
learn more about the ALS Registry, then enter your zip code to
write your senators and ask for their support.
Events
• SILVERTON, OREGON on September 5, 2008, A benefit at First Friday, to help the ALS Association's efforts to provide critical patient care to the 400 people with ALS living in Oregon.
Contact: Chadwick Family, www.alsfund.org
First Friday to Fight ALS www.alsfund.org/firstfriday
• Other ALS Awareness & Fundraising Events
Start a fundraising events to raise awareness about Lou Gehrig's disease.
Participate or sponsor one. List your ALS fundraising event on this site.
Upcoming Events and Fundraisers for ALS
• THE EVENT that started this website...
Green Bay Marathon, Wisconsin, May 21st, 2006: Frank completes the May 21st Green Bay marathon in 3:50:41. He leads a team of 19 runners & walkers and raises over $7,500 to help defeat ALS.
Sponsor donation total - over $7,500! THANK YOU!
Team Photos
Full Story
About ALS (Lou Gehrigs disease)
• ALS is a progressive neurodegenerative disease that attacks the motor neurons making even the simplest movements - walking, talking, gesturing, swallowing - nearly impossible.
• Approximately 30,000 people in the U.S. are living with ALS. It claims some 5,600 lives each year.
How You Can Help Defeat ALS
• Raising awareness about ALS is crucial. Learn more about this devastating disease.
• Do Local Fundraising - Start a local event to raise awareness about ALS.
• Contact Your Elected Official - Urge your Elected Official to support the ALS Registry Act.
• Donate to help defeat ALS - Make a donation to help fund ALS education and research.
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