Approximately 30,000 people in the U.S. are living with ALS. It claims some 5,600 lives each year. Our family has been affected twice - once in 1988, again in 2007. DefeatingALS.com is dedicated to raising awareness of ALS in memory of our loved ones.
In just a few minutes, you can help. Learn how you can raise awareness of ALS & make a difference.
CDC LAUNCHES ALS REGISTRY WEBSITE!
The Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR) has launch the National ALS Registry website. This is the first phase of building a website that later will include an online portal where people with ALS can enroll in the ALS Registry.
The website is available at www.cdc.gov/als.
EVENTS IN YOUR NEIGHBORHOOD
• NATIONWIDE: Participate in a local Walk to D'feet ALS. They are happening all over the nation. Find a walk in your area - visit The ALS Association then enter your state or zipcode.
•
Dallas Texas Bet on a Cure for ALS Saturday September 12th, 2009
A casino night on Saturday, September 12, 2009 to raise money for ALS Therapy Development Institute (ALS TDI), a non-profit research company whose mission is to aggressively seek out, develop and deliver promising therapies to slow, arrest and cure ALS. Visit www.DallasALS.com for details and to purchase tickets.
• Other ALS Awareness & Fundraising Events
Start a fundraising events to raise awareness about Lou Gehrig's disease.
Participate or sponsor one. List your ALS fundraising event on this site.
Upcoming Events and Fundraisers for ALS
• THE EVENT that started this website...
Green Bay Marathon, Wisconsin, May 21st, 2006: Frank completes the May 21st Green Bay marathon in 3:50:41. He leads a team of 19 runners & walkers and raises over $7,500 to help defeat ALS.
Sponsor donation total - over $7,500! THANK YOU!
Team Photos
Full Story
About ALS (Lou Gehrigs disease)
• ALS is a progressive neurodegenerative disease that attacks the motor neurons making even the simplest movements - walking, talking, gesturing, swallowing - nearly impossible.
• Approximately 30,000 people in the U.S. are living with ALS. It claims some 5,600 lives each year.
How You Can Help Defeat ALS
• Raising awareness about ALS is crucial. Learn more about this devastating disease.
• Do Local Fundraising - Start a local event to raise awareness about ALS.
• Support ALSA Public Policy - Contact your Elected Officials on important legislative issues.
• Donate to help defeat ALS - Make a donation to help fund ALS education and research.
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